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By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Stories in English: C

Candy: My Mother Had Scleroderma My mother died from scleroderma in October of 2001. For a long time, she had difficulty finding a doctor who knew something about scleroderma…

Cara: Morphea Scleroderma I recently saw a rheumatologist who says it's limited or localized scleroderma…

Cara R: Morphea The cream made my skin burn so I stopped using and it and now (about ten months later), the hard discolored skin has spread over most of my upper left thigh and it has started hurting…

Carla: CREST Syndrome and Fibromyalgia When I read some of these stories, they scare the devil out of me. Is this really that bad?…

Carla M: Morphea I am a twenty-nine-year-old mother of three. I have localized morphea on my lower back…

Carlos: Linear Sclerodermia (En Coup de Sabre) I have been in treatment, but in my opinion I have not done much better, perhaps it is even worse…

Carlos S: Son of Father with Diffuse Systemic Sclerosis (Diffuse Scleroderma) My father is a simple man, he works the land, and does not have a great degree of schooling, but if there is something he has been taught is to never give up…

Carmen: Linear Morphea, En Coup de Sabre I am an otherwise healthy, thirty-eight-year-old female, diagnosed with the en coup de sabre form of linear scleroderma…

Carmen Rijos: Systemic Scleroderma Carmen is in need of a stem cell transplant for scleroderma…

Carol C: CREST Syndrome Scleroderma and Raynaud's have not robbed me of a fulfilling career…

Carol F: CREST Syndrome I feel so alone right now and it would be nice to talk with someone who understands what I am going through…

Carol Langenfeld: Diffuse Scleroderma People tell me that I have earned my credentials as a "certified patient" the hard way…

Carolina: Linear Scleroderma As time went by it disseminated throughout my leg and reached my foot…

Caroline: Niece of Scleroderma Patient We are trying to get my aunt into a nursing home…

Caroll: Morphea I would like to know from someone who has children, as to whether my daughter can develop the same thing…

Carrie: CREST Syndrome All this started in 1995, as far as receiving any diagnosis. First, I was diagnosed with breast cancer. I went through radiation and chemotherapy…

Cath: Sjogren's Syndrome Finally, a diagnosis for all of these (at times) debilitating symptoms…

Catherine: Mother of Linear Scleroderma Patient Emma's linear scleroderma started on her left cheek at the age of four years and by the time she was eight that side of her face was quite deformed…

Catherine C: Surviving Daughter of Pulmonary Fibrosis Patient Less than twelve months later, on September 8, 2005, my mum died in the hospital, after suffering a collapsed lung three weeks earlier…

Catherine S: Surviving Daughter of Pulmonary Fibrosis Patient It's been nearly nine months ago now. I miss my mother every day…

Cathy: Probable CREST Scleroderma It really starting going bad for me in November of 1999. I work on rural mail delivery and live in Quebec, Canada…

Cathy B: Spouse of Scleroderma Patient I am looking for other wives who also want someone to talk to and share stories or ideas with…

Cedric: Linear Scleroderma, En Coup de Sabre (South Africa) I became aware of a small brown spot just above my right eye and gradually this patch became bigger and darker…

Charmaine C: Lichen Sclerosus and Scleroderma Soon multiple spots developed across my abdomen, with a few stray ones on my forearms and more on the left leg…

Charmaine J: Lichen Sclerosus Atrophy (LSA) My skin is very hard and has no elasticity so sitting, laying, or riding in a car are uncomfortable…

Chela: Diffuse Scleroderma My facial expression changed a lot, but this went unnoticed to the people that do not know me very well…

Cheryl: Surviving Daughter of Systemic Sclerosis Patient Around three o'clock in the morning when all her pain medication finally gave her a reprieve, she looked over and asked me to come sit next to her so that she could see me…

Chloe: Morphea I dreaded the mandatory swim class at my elementary school due to the same question that was asked by curious children over and over again, "Do your parents beat you? How come you have such bad bruises?"…

Chloe S: Telangiectasia It is kind of like little red broken-up birthmarks all over my body…

Chris Beck: In Memory of My Mother, Veta Breit Can someone help me? My hands hurt and get cramped sometimes when they get cold…

Chris D: Systemic Scleroderma About eighteen months ago my entire body began going haywire…

Chris S: Mother of Linear Morphea Patient Whatever it was, I knew it should not be there…

Christina N: CREST Scleroderma My daily life is a strain on my family, but they never complain. Not once have they moaned to me about the changes we have had to make…

Christene: Limited Scleroderma I was diagnosed when I was just nineteen and at that time it was one of the scariest moments of my life…

Christin: Linear Scleroderma My name is Christin. I am a twenty-year-old college student. I have had scleroderma for as long as I can remember…

Christine: Morphea and Lichen Sclerosus et Atrophicus I would love to know if there are any other solutions out there. Even ways to cover up a bit when I am in my bathing suit…

Christine M: Morphea My doctors do not know what to do anymore and that is the scary part for me…

Christine S: Diffuse Stage 2 Scleroderma I did not know whether to break out the tissues or the champagne or both! I was so happy that finally someone had agreed that had something wrong with me, and that it had a name…

Christy: Systemic Scleroderma with CREST I have learned from personal experience that sometimes not even our closest friends want to hear about medical changes taking place within us…

Cindy: Undifferentiated Connective Tissue Disease (UCTD) He seems to think that I have Systemic Lupus Erythematosus, but until my symptoms show more criteria for it, he can't call it that…

Cindy E: Morphea Scleroderma I now have an area that grew much faster and larger than any of the marks I had as a child…

Cindy Fuchs-Morrissey: Mother of a Progressive Systemic Sclerosis Child Hilary has an aggressive form of scleroderma with swallowing problems, bowel problems, fatigue, acral bone dysplasia of the hands and feet…

Circadiano: Limited Scleroderma with Raynaud's in One Finger (Italy) About ten years ago she was diagnosed with lupus…

CJ: Systemic Scleroderma and Fibromyalgia I have been going to doctors for over five years now and have just recently been diagnosed…

Claude: Eosinophilic Fasciitis I am a forty-four-year-old male from Ottawa, Canada. In the late spring, early summer of 2003, my wife noticed some red splotches on my lower legs…

Claudia: Systemic Scleroderma Nature is wise, no doubt about it, when something is wrong with our body we have to pay attention…

Clod: Raynaud's Syndrome (Italy) Since I was thirteen I have always suffered from the cold, so much so that my hands and my feet became purple in the true sense of the word, afterwards white and later red…

Cnette: Lichen Sclerosis et Atrophicus/Morphea Unfortunately I tried to relieve myself from the itching with over the counter products which did not work…

Connie: Surviving Daughter of Scleroderma Patient My mother lived with scleroderma for thirty-nine years and just passed away on January 10, 1999, at the age of fifty-two…

Connie D: Morphea Scleroderma At age sixteen I developed what I thought were bruises on the biceps of both arms…

Corey C: Surviving Daughter of Scleroderma Patient It was a very long process and scary because she really did not know what to expect next…

Craig R: CREST Scleroderma I had my first scleroderma symptoms at age twenty-two, which included severe Raynaud's with some ulceration and tissue loss…

Cris: Morphea Scleroderma I am twenty-two years old and I have suffered from this illness for three years, since I got pregnant…

Crissie: Surviving Sister of Scleroderma Patient Seek out a doctor who specializes in this disease as soon as you know you have it…

Crystal: Morphea It is a very misunderstood disease. There are so many different types. I have mine on my spine, oval shaped and looks like a bruise…

Crystal R: Morphea One day when I was at school I was called to the office and asked if my parents were abusive…

Cynthia: Diffuse Scleroderma I was so stressed out over having this disease that I could not eat. I lost weight and I lost my strength…

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

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