Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Cara: Morphea

Over the years, I struggled with my ugly skin. But I have come to accept it.

Flowers for Cara by Shelley Ensz My name is Cara and I was diagnosed with morphea when I was eighteen years old. I am now thirty-one.

My first spot was on my upper back and it has very slowly spread to my left arm, abdomen, left upper leg, and right lower leg.

Over the years, I struggled with my ugly skin. But I have come to accept it.

I once tried Potaba, but it made me so nauseated that I stopped, I also remember using some steroid cream, but it did not seem to help. So I basically just lived with it.

I fell in love with and married a wonderful man who loves me for me. We are now four months pregnant. Over the last six months, my right hand has become swollen and tight, and both of my knees are stiff and sore, and my latest spot is on the top of my left hand.

Until now, I had only seen a dermatologist, but I recently saw a rheumatologist who says it's limited or localized scleroderma. Because of the pregnancy, I can't start any treatment like Methotrexate, but I read a story about some homeopathic treatments. I would be open to that if anyone has any information.

Anyone is welcome to email me if they want. Thanks for listening.

To Contact the Author

New email address needed.
Old Email Prefix: Caravp
Story posted 11-18-01
Email note posted 01-18-05 SLE

Story Artist: Shelley Ensz
Alternative Therapies
Limited Scleroderma
Morphea (Localized Scleroderma)
Pregnancy and Scleroderma
Types of Scleroderma

This story is featured in the book Voices of Scleroderma Volume 2
Go to Cara R: Morphea
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

The most important thing in the world to know about scleroderma is!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.