This is a request for donations for the
Carmen Rijos Private Foundation
In October, 1998, my twenty-one-year-old niece, Carmen Rijos, was diagnosed as having Scleroderma, a disease that causes a persistent hardening of the body's own tissue - skin, lungs, digestive tract, heart, kidneys, muscles, and nerves.
The disease predominantly affects women in their 30's and 40's; however, cases have been diagnosed in very young children and in older adults. Although doctors and researchers find many aspects of the disease a mystery, those at Virginia Mason Research Center in Seattle, Washington have been very successful in performing on patients with Scleroderma an experimental treatment called Stem Cell Transplant.
Although the Virginia Mason Research Center believes that Carmen is an excellent candidate for this treatment, her family's insurance does not cover the expense of the procedure which costs approximately $250,000. Without the procedure, Carmen has a maximum life expectancy of five years and will become paralyzed during this short period of time.
The Carmen Rijos Private Foundation was established not only to raise the necessary funds for Carmen's Stem Cell Transplant but also to help other victims of this devastating illness. For this reason, we hope that you and other members of the community will join together in this cooperative philanthropic effort.
With your tax deductible contribution to the Carmen Rijos Private Foundation you will be making a personal commitment toward improving Carmen's chance at life, and you will be participating in making her recovery a reality. In addition, you will be helping other victims who will benefit from the results of this research.
Your generosity and support is greatly appreciated by Carmen, her family, and the outstanding staff of doctors and researchers at Virginia Mason Research Center.
|Piedad Nicolas, Director
Carmen Rijos Private Foundation
335 Locust Avenue
Port Chester NY 10573
(Story posted 3-1-00)
New email address needed 09-06-06 SLE
Carmen's Old Email Prefix: CLRIJOS
Story Artist: Shelley Ensz
Stem Cell Transplants for Scleroderma
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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