Truth is I was diagnosed about ten years ago. After multiple exams, many visits to different dermatologists and immunologists I was diagnosed with localized linear scleroderma.
This began when I was about twelve years old, with little spots on my right leg thigh. As time went by it disseminated throughout my leg and reached my foot. At that time (I am talking of about 1997) I was treated with methotrexate once a week and folic acid the rest of the week.
I was also told to exercise, but not to put pressure on my knee, which meant I could not do a lot of jumping: no jogging on hard surfaces, no basketball, mostly swimming and cycling so my muscles would not suffer more atrophy.
After two years the treatment ended and scleroderma did not advance to muscle or bone, but along the years I have found more spots on the same leg.
In spite of the initial diagnosis, I think that as time went by, linear scleroderma has turned into morphea, because the characteristics are more similar.
I would like to be in contact with other people in a similar situation so they can tell me which treatments they have followed, etc.
Email: [email protected]
Story edited 06-09-06 JTD
Story posted 09-26-06 SLE
ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
(Español/Spanish) Carolina: Esclerodermia Lineal
Linear Scleroderma Stories
Types of Scleroderma
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