My husband, who is fifty-two years old, was diagnosed with scleroderma in September 2000. Of course, it was quite a shock to hear what it actually was, but we had known something was wrong for several years because of the different symptoms he experienced.
I am thirty-seven years old and we are both confused about everything being thrown at us. I am trying to stay positive, but my husband is very pessimistic.
Things are much better now. We have gotten through the last two years with all the support we have received from everyone on this website.
The first year was the worst physically for my husband. He was on many different medications, and between the effects of the medications and the emotional strain, it was overpowering. Thankfully, my husband reacted positively to the medication and has been stable for eight months now.
I would love to hear from other spouses who would like to share their story. We are all here to support each other and get through this hard-to-understand disease together.
Thanks again to the SCLERO.ORG site for all the support and encouraging information you provide. Take care to all of you and god bless.
Story posted 1-03-01
Story update 8-20-02
Vol. 2 matching edits 01-04-05 SLE
Story Artist: Shelley Ensz
Story Editor: Judith Devlin
What is Scleroderma?
This story is featured in the book Voices of Scleroderma Volume 2
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
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7455 France Ave So #266
Edina, MN 55435-4702 USA
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