Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Cathy B: Spouse of Scleroderma Patient

It was very devastating news.

Flowers for Cathy by Shelley Ensz My husband, who is fifty-two years old, was diagnosed with scleroderma in September 2000. Of course, it was quite a shock to hear what it actually was, but we had known something was wrong for several years because of the different symptoms he experienced.

I am thirty-seven years old and we are both confused about everything being thrown at us. I am trying to stay positive, but my husband is very pessimistic.

~ Update August 2002 ~

Things are much better now. We have gotten through the last two years with all the support we have received from everyone on this website.

The first year was the worst physically for my husband. He was on many different medications, and between the effects of the medications and the emotional strain, it was overpowering. Thankfully, my husband reacted positively to the medication and has been stable for eight months now.

I would love to hear from other spouses who would like to share their story. We are all here to support each other and get through this hard-to-understand disease together.

Thanks again to the SCLERO.ORG site for all the support and encouraging information you provide. Take care to all of you and god bless.

To Contact the Author

Cathy B.
[email protected]
Story posted 1-03-01
Story update 8-20-02
Vol. 2 matching edits 01-04-05 SLE

Story Artist: Shelley Ensz
Story Editor: Judith Devlin
What is Scleroderma?

This story is featured in the book Voices of Scleroderma Volume 2

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Cedric: Linear Scleroderma, En Coup de Sabre
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

The most important thing in the world to know about scleroderma is!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.