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Charmaine J: Lichen Sclerosus Atrophy (LSA)

My family doctor was stumped.

Fuschias by Sherrill Knaggs, ISN Artist I have had lichen sclerosus atrophy (LSA) for almost four years. It started with a splotchy rash on my underarms and stomach, slowly spreading and did not hurt so I did not see a doctor for awhile.

My family doctor was stumped. So I saw a dermatologist, which took six months as I was a new patient. A biopsy diagnosed LSA. She gave me little information. I then saw a new doctor who has treated me since.

I also developed it in my vaginal area and being fifty-six, I thought the thin skin and irritation was due to post menopause. I was treated for six weeks with medicines and have some scarring.

I have very hard skin on my armpits, front and back of my thighs, most anywhere I have folds of skin on my body. I use protopic and see my doctor every so often.

Three months ago, I came in contact with something that caused a flare up and I peeled like a burn victim. I have been in extreme pain. We have tried to eliminate many things as the cause, but all in all, I am in pain most of the time even with using creams for treatment. My skin is very hard and has no elasticity so sitting, laying, or riding in a car are uncomfortable.

Once this terrible outbreak is over my doctor is going to try light treatments on me. This is a pretty miserable way to live.

I also have fibromyalgia and arthritis. I had to quit working three years ago due to all of this.

Thank you for listening, hope this helps someone else.

To Contact the Author

Charmaine J.
Email: Withheld by Request
Story edited 04-02-06 JTD
Story posted 06-09-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
LINKS
Arthritis
Fibromyalgia
Lichen Sclerosus

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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