SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Chloe: Morphea

I am scared but I am glad to have found a place where my fears and feelings are understood.

Pelargonium for Chloe by Sherrill Knaggs At seven years old I began to complain about an itch on my upper left thigh. After seeing my family doctor I was instructed to travel to the 'big city' to see a specialist where I was then diagnosed with localized morphea scleroderma. The initial treatments were successful but by thinning out the affected areas the treatment also thinned out the surrounding areas of normal skin, making my scars very apparent.

I dreaded the mandatory swim class at my elementary school due to the same question that was asked by curious children over and over again, "Do your parents beat you? How come you have such bad bruises?"

Once I became a teenager the prying eyes meant even more embarrassment for me. I own one pair of shorts that fully cover most of my scarring and no short skirts. I hate my scars. It seems odd to have one nice normal leg and the other to be so imperfect.

I have been in remission since my treatment began eleven years ago. I am now nineteen and have noticed large spots of discoloration all along the lower front part of my affected leg. I have an appointment today. The first in almost five years. I am scared but I am glad to have found a place where my fears and feelings are understood. Thank you!

To Contact the Author

Chloe
New email address needed 04-29-08 SLE.
Old Email Prefix: chloenicolle
Story posted 8-1-03

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
LINKS
Juvenile Scleroderma
Localized Morphea Scleroderma

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Chloe S: Telangiectasia
 
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including memorials for
Frances Maude Baldwin Watson, Rubye Mai Blocker Westmoreland.
Thanks to Tamika Forteau and Paul and Margaret Phifer for raising scleroderma awareness!
Donate or Shop Now
 

TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content. Privacy Policy.
 

The most important thing in the world to know about scleroderma is sclero.org!

Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.