My first sign of the disease was fifteen years ago. I had peeling skin on my leg. After three doctors and tests for lyme diseas and many other illnesses, I was diagnosed with morphea.
My first treatments consisted of several painful injections into the area and some type of ointment. The next doctor tried Trental, Accutane, Plaquenil, and a few other medications, with little success. Then I was sent to another dermatologist who prescribed a medication with horrific side effects.
After being advised by my family doctor and pharmacist that the risks of that medication exceeded the benefits, I went to another dermatologist. He put me on methotrexate and Dovonex and Ultravate ointments. After one year, I have not noticed any difference in the progression of the disease.
One doctor even suggested that my having spent time in Europe before the disease showed itself may be related somehow! I am now becoming self-conscious about my looks and worried about the pain I have been feeling in my right shoulder.
I am worried that the disease will travel to my face. I do not want to be stared at and questioned. I almost like winter and all this snow, so I can cover up!
I would love to know if there are any other solutions out there. Even ways to cover up a bit when I am in my bathing suit. I hate feeling unattractive. I know that it is what is inside that counts, but after fifteen years, I am starting to become self-conscious. I would love to hear advice, ideas or support.
New email address needed.
Old Email Prefix: meandwilly
Story posted 1-1-01
Story edited 7-21-03
Email comment posted 7-21-03 SLE
Story Artist: Shelley Ensz
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