I have only recently been told that this is the disease that has bothered me since the age of six. My mother took me to the doctor as a child. She was told I have a childhood skin disorder.
I have several scars from the affected areas that I had as a child. The scars started off small, slightly discolored and round. They all turned white, hard and scaly. It took at least ten years for them to fade and turn into slightly depressed, darkened skin. They look more like a burn scar.
What bothers me now are the new areas that are now affected. I noticed new white spots on my right breast. It had been more than a decade with no new signs of any discolored skin. I now have an area that grew much faster and larger than any of the marks I had as a child. My dermatologist is using a topical steroid cream to control the spreading. He has advised me to see a rheumatologist.
I also suffer from joint pain, headaches, and lack of energy. I have not had any blood work or biopsies yet.
New email address needed 09-26-06 SLE
Old Email Prefix: ydnictsnre
Story posted 1-30-03
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.