Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Circadiano: Limited Scleroderma with Raynaud's in One Finger


Lavendar Pelargonium by Sherrill Knaggs, ISN Artist My mother, who is eighty-five years old, is affected by limited scleroderma and in the winter months she gets Raynaud's Syndrome in a finger. About ten years ago she was diagnosed with lupus.

Her problem is that every so often she suffers from attacks of pruritus and more or less every year she gets a fever of around 38.5 Celsius. The doctor has suggested increasing her dose of Medrol, from 4 to 16 mg, and after a few days the fever goes away and the symptoms disappear for a while.

For years, during these periods of good health the dose of Medrol was always 4 mg, without interruption, with the conviction that this would limit the attacks of pruritus.

My question is if in these periods we can lower the dose of cortisone and only take it when the fever attack presents itself, since some people have told me that for pruritus an antihistaminic is enough and she would not need cortisone.

P.S. Cortisone has caused dark spots that look like hematomas to appear on her. I would appreciate your opinion.

To Contact the Author

Email: [email protected]
Story edited 06-26-06 JTD
Story posted 08-21-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Limited Scleroderma
Lupus Stories
Raynaud's Syndrome
Raynaud's Stories
Scleroderma Experts

(Italiano) Circadiano: Sclerodermia Limitata con Modesto Raynaud ad un dito
(Italiano) Sclerodermia Limitada
(Italiano) Fenomeno di Raynaud
(Italiano) Sclerodermia

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to CJ: Systemic Scleroderma and Fibromyalgia
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

The most important thing in the world to know about scleroderma is!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.