SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

CJ: Systemic Scleroderma and Fibromyalgia

I have been going to doctors for over five years now and have just recently been diagnosed.

Sunflowers for CJ by Shelley Ensz I would like to know if other people with the same diagnosis have a lot of problems with muscle spasms?

It seems like the least little bump or movement can set off a severe case of muscle spasms. It is interesting to find that what you did yesterday did not bother you, but the next day it might send you to the doctor's office crying in pain, and you begin to think you are insane because you used to be able to take a few pains in stride. Now you get angry, stressed and depressed.

I have been going to doctors for over five years now and have just recently been diagnosed.

~ Update 02-24-02 ~

My brother has been diagnosed with Stiff Man Syndrome, which we've been told is a form of neuropathy, akin to scleroderma. I cannot find any articles on this condition. If anyone out there has any information on this syndrome, please e-mail me.

~ Update 05-28-02 ~

Maybe this will help someone else like it did my brother and I. We heard through the scleroderma grapevine about MSM (a natural sulfur supplement). It works!

I stopped taking a prescription pain reliever medication due to stomach problems, as I was in a lot of severe pain. I was up to eight to ten pain pills daily. Once I started taking seven grams of MSM a day, my pain medication need dropped down to only five, sometimes six pills a day.

Some of this all natural stuff seems to help me.

To To Contact the Author

CJ
Email: [email protected]
Story posted 02-10-02
Update posted 02-24-02
Email address updated 03-22-02
Story update 05-28-02 posted 6-17-02
Story edited 07-07-03

Story Artist: Shelley Ensz
Story Editor: Judith Devlin
LINKS
Difficult Diagnosis
Fibromyalgia
Skeletal Involvement
Types of Scleroderma
UCTD

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Connie: Surviving Daughter of Scleroderma Patient
 

MOST RECENT SCLERO.ORG DONORS
In Loving Memory of:
   LOUISE BEELER: Susan Moore.
   PATRICIA ANN BLACK: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Keith and Rosalyn Miller, and Elaine Wible.
   KELLEY SIMMONS CORDEIRA: Susan Vance.
   GAYLE HEDLIN: Daniel and Joann Pepper and Nancy Smithberg.
   GENE WILKINSON: David and Carleen Waterman.
   Click Here to DONATE FOR SCLERODERMA IN MEMORY.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
   Click Here to SCLERODERMA SHOP OR DONATE.

 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

 
The most important thing in the world to know about scleroderma is sclero.org!
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.