It seems like the least little bump or movement can set off a severe case of muscle spasms. It is interesting to find that what you did yesterday did not bother you, but the next day it might send you to the doctor's office crying in pain, and you begin to think you are insane because you used to be able to take a few pains in stride. Now you get angry, stressed and depressed.
I have been going to doctors for over five years now and have just recently been diagnosed.
My brother has been diagnosed with Stiff Man Syndrome, which we've been told is a form of neuropathy, akin to scleroderma. I cannot find any articles on this condition. If anyone out there has any information on this syndrome, please e-mail me.
Maybe this will help someone else like it did my brother and I. We heard through the scleroderma grapevine about MSM (a natural sulfur supplement). It works!
I stopped taking a prescription pain reliever medication due to stomach problems, as I was in a lot of severe pain. I was up to eight to ten pain pills daily. Once I started taking seven grams of MSM a day, my pain medication need dropped down to only five, sometimes six pills a day.
Some of this all natural stuff seems to help me.
Email: [email protected]
Story posted 02-10-02
Update posted 02-24-02
Email address updated 03-22-02
Story update 05-28-02 posted 6-17-02
Story edited 07-07-03
Story Artist: Shelley Ensz
Story Editor: Judith Devlin
Types of Scleroderma
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
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