SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Corey C: Surviving Daughter of Scleroderma Patient

She seemed good spirited and under control.

Lynn C. My mom was diagnosed with scleroderma in May of 1999. It started out as easy and manageable, but after six months to a year it started to go a different direction. She ended up on dialysis and with more and more doctor's appointments.

She seemed good spirited and under control. She was angry sometimes because she did not understand why it was her and what she did.

On Christmas of 2001, she was admitted to the intensive care unit (ICU) for water on her heart and they indicated then that she had a small part of scleroderma on her lungs. It was a very long process and scary because she really did not know what to expect next.

She stopped her dialysis because they said she went into remission and that they did not see any reason to continue her dialysis, which I thought was great.

In 2003, my mom's breathing decreased and she was placed on oxygen twenty-four hours a day. My son spent a lot of time with my mom. He thought she was the best of Nanas. She gave him her heart every day that she was here and she loved him with all her heart. We pretty much spent twenty-four hours a day with her. I did not want to miss out on any part of her life for a second.

In 2005, we were going to try a new testing drug and we were in the process of going through the training of how, when and what we were supposed to do.

On February 28, 2005, I went to see my mom after work and she said that she wanted to go to the hospital. She touched my cheek and said, "It's okay, Corey. I love you and everything will be fine." I told my dad and he called an ambulance and she was rushed in.

On March 1, 2005, she passed away.

I just wanted to say that parents are created for a reason. Cherish every moment that you have with them. I miss my mom very much. I really do not understand all of this and still am not taking this very easy.

I love you and I miss you, mom!

To Contact the Author

Corey C.
Email: [email protected]
Story edited 08-04-05 JTD
Story posted 08-05-05 SLE

Story Photo: Lynn C.
Story Editor: Judith Devlin
LINKS
Dialysis
Heart (Cardiac) Involvement
Kidney (Renal) Involvement
Pulmonary (Lung) Fibrosis
Survivor Stories: In Memory
What is Scleroderma?

PDF Brochure: What is Scleroderma?

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Craig R: CREST Scleroderma
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

 
The most important thing in the world to know about scleroderma is sclero.org!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.