After several MRI's, a CDA and recently an angiogram (because my doctor thought I had a blood clot in my shoulder) that were all negative, I am still undiagnosed. That small spot has not grown in the past six months, but it also has not healed. It only bothers me when I bump it.
I have been a diabetic for thirty years, and used chewing tobacco for thirty-three years. After all the negative tests, my doctor now suspects Berger's Disease.
After searching around the web I found this web site about scleroderma, which my sister has been diagnosed with due to tightness and dryness in her skin. It is amazing what people learn on their own that doctors should already know!
Thanks for your web site!
New email address needed
Old Email Prefix: dps48
Story posted 08-10-04 SLE
Email note posted 01-24-05 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
PDF Brochure: What is Scleroderma?
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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