SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

David B: Raynaud's

The pain of feeling cold can severely add to my depression.

Yellow Desert Flower, Sherrill Knaggs, ISN Artist I am fifty-one years old and suffer with Raynaud's, bipolar affective disorder, high anxiety and phobias for which I am unable to take medication due to severe side effects. I am slim for my height, which is 5' 10". During the late fall, winter and early spring seasons I experience extreme cold, aching and pain in my hands, arms and lower legs in an ambient temperature of anything less than 65 Fahrenheit (18 Celsius). This is often made far worse when I am in a state of depression or anxiety, when my body temperature can drop by a degree or so.

Any sudden upset can leave me shivering with cold, my fingers going white, even when the ambient temperature is reasonably warm. I have noticed that when ambient temperatures are cold at night I wake up with a temperature of around 95 F (35 C), and I feel more comfortable than would be expected. This sensation goes as soon as I take warm food or fluid, and I start to feel the normal pains in my limbs, along with shivering.

I have found that the only cure for this is to increase my blood temperature either by strenuous exercise or by bathing in water that is not too hot. Bathing can take as long as thirty minutes before I feel comfortably warm, and this comfort can soon go if the ambient temperature is not very high.

My doctor has recommended in the past that I take a holiday in a warmer country, such as Spain or Italy during the coldest part of winter, but this has not always been possible. I suffered the same symptoms as a child, during which time I was at a private boarding school in England whilst my parents lived in the tropics. I suffered very bad chilblains as well as the symptoms I still experience throughout the colder months. These symptoms would disappear as if by magic on landing in South America; the chilblains disappearing within a day or so.

In order to ease the discomfort experienced when the ambient temperature is low, I wrap up as warmly as possible, wearing as many layers as possible, especially on my limbs. I try to avoid going out when outside temperatures are lower than about 40 F (4.5 C) or if there is a severe chill factor in the wind.

I try to remember that I will feel much better come April, but the pain of feeling cold can severely add to my depression. I would be very glad to hear from anyone else who shares similar problems.

To Contact the Author

David B.
Email: [email protected]
Story submitted: 12-11-02
Story posted: 1-2-02

Story Editor: Judith R. Thompson
ISN Senior Artist: Sherrill Knaggs
LINKS
Depression
Raynaud's

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

Go to Dave Wilcher: Diffuse Scleroderma
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

 
The most important thing in the world to know about scleroderma is sclero.org!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.