It is heartbreaking to see the pain my mom suffers from this painful disease.I pray everyday that a cure comes. I wish that there was something I could give to her from my healthy body. If I could, I would do it in a heart-beat.
This terrible scleroderma disease started with eating problems.It then proceeded into circulation problems, with cold hands and feet.Her hands that would turn purple because of being so cold. Then years later, and as of today,she suffers from painful ulcers on her hands, fingers, legs, and feet.They have taken years and years to heal.They are still in the process of healing.
She was hospitalized. She was also in a wheelchair due to the excessive pain of the ulcers in her legs and feet.She had a homecare nurse for a couple of years.Now her ulcers are healing, but when one goes away,she gets another.Her pain is terrible.
She is such a trooper, though.She pushes onward and acts as if she is in no pain at all.But, her family knows better.
She is my hero. I wish for a cure every day.My biggest Christmas wish is not for presents, but for her to be all better.
To all that suffer from this, my heart goes out to you. You have strengthbigger than the world.
Story submitted: 12-03-02
Story posted: 01-01-03
Story Editor: Judith R. Thompson
ISN Senior Artist: Sherrill Knaggs
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
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