I am a fifty-nine-year-old female and I was diagnosed with systemic scleroderma three months ago.
At this time the problems are mostly skin related, with hardening and lesions. I am tired a lot and am in pain under my arms. The back of my knees are so hard that I have difficulty bending. I am frequently chilled.
I'm just beginning to have Difficulty Swallowing and have pain in my kidney area. I am taking Minocycline 100 mg. twice a day. It has helped my skin to soften and the lesions to start shrinking.
My legs do not straighten out in bed at night due to swelling in the groin area and tightening of the skin. I seem to be puffy. I do not have the typical involvement in my hands and it took months and many tests to diagnose my case.
No one shares a timeline with me or will tell me what to expect next. I am trying to just enjoy each new day and attack each new symptom as it comes about.
New email address needed 09-26-06 SLE
Old Email Prefix: ARTDAWM
Story submitted 6-20-02
Story posted 7-11-02
Dysphagia (Difficulty Swallowing)
Skin Fibrosis (hardening)
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
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