I was diagnosed with linear scleroderma around six years ago. Initially they said it was solar lentigo, after a biopsy. Afterwards the diagnosis changed to lupus and finally, after more tests, a specialist diagnosed me with linear scleroderma (en coup de sabre).
I have it in my face and neck; it begins in the left side of my forehead, ending in my chin and I have a dark spot on the right side of my neck. People usually think it is the result of a car accident, since it is dark and deep. It is uncomfortable to have to explain my illness to others, but I must due to my work. I had a special exam and they told me that the illness has ceased, but sometimes I feel worse, as if the spot were becoming darker and deeper.
I am afraid also because it goes through my left eye, which I see becoming smaller. Also, I was sent to an aesthetic specialist, who told me that if I had cosmetic surgery to put fat in the depressed areas and particularly in the forehead, the result would not be flattering, and so I declined.
Email:Withheld by Request
Story edited 01-25-11 SLE
Story posted 01-25-11 SLE
Story Translator: Alba León
Elizabeth O: Esclerodermia Lineal
Acerca de la Esclerodermia
Difficult Diagnosis Stories
Eye Involvement Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
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