My name is Faye, and I am Scottish. Here is my story. At the age of about six or seven, I developed what looked like a bruise on the front of my left thigh. It started off as a small purplish spot. My mother was very worried when it did not go away, so I was taken back and forth to the hospital.
Many a doctor scratched their head as no one seemed to know what this strange thing was. "Could it be leprosy?" I was asked. "Have you any pain?" "No," I replied. And because I had no problems walking they lost interest. I was later told it was a rare skin condition called morphea, and from then on I have been left in the dark.
My mum thinks that I was knocked hard on my leg while out playing, and that is what caused it.
I do not recall the time scale as it is all a bit of a blur now, but the bruise grew to full size in my teenage years and has now, thankfully, stopped growing. It is about seven inches long and four inches wide. It is shaped like a picture of a rabbit, of all things!
I have lost some of my thigh muscle as it has grown, but I am in perfect health. For this I am grateful! I can walk, run, swim and ski. It does not stop me from doing anything at all. But sometimes at night I get aching pains and I worry about people staring at me when I am in my swim wear, but that is no big deal. I do get very tired and very stressed easily which I have been learning to control over the years.
I am now twenty-nine, living in Sydney, Australia, and getting married in February, so I have lots to look forward too!
If anybody wants to write to me I would be really interested to hear similar stories.
Email: [email protected]
Story posted 12-5-03
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Types of Scleroderma
What is Scleroderma?
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.