I am a young woman, age twenty-three, and in August of 1999, I was admitted to Saint Anna Hospital in Ferrara and diagnosed with systemic sclerosis.
I have also suffered from allergic asthma for around twenty years. At the moment, I have cyanosis of the hands with blue fingers and loss of strength. My breathing is currently under control. I must say, first of all, that before arriving at this diagnosis, I consulted many doctors at great expense and without satisfactory results.
I would like to understand much better the various aspects of my disease and the damage that it could cause me in order to answer my doubts, such as, will I be able to live a normal life?
I want to encourage all the people who suffer from scleroderma like me so that they manage to beat this disease. Thank you for this space that was given to me to tell of my experiences and talk about my disease.
New email address needed 12-20-06 SLE
Old Email Prefix: indevast
Story posted 11-27-99 SLE
Story edited 3-25-02 SLE
Story Edited 7-28-03 JTD/V1
Story Translator: Kevin Howell
English translation posted 6-18-02
Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
(Italiano) Flora: Scleroderma Sistemica con asma allergico bronchiale
(Italiano) Sclerodermia dalla A alla Z
(English) Raynaud's (blue fingers)
(English) Systemic Sclerosis
(English) Systemic Sclerosis
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
Kevin Howell is the ISN Translator (Italian to English) for this story. He is a Clinical Scientist for Professor Black at the Royal Free Hospital in London.
Reading Voices of Scleroderma Books: Diana Kramer.
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