I am fifty-seven years old, and three years ago I was diagnosed with Sjogren's Syndrome but, in reality, I have been suffering from it for almost thirty years.Before the final diagnosis, my doctor sent me for numerous specific tests, after which he drew his conclusions.
Ten years ago, I had autoimmune pericarditis. I suffered so much! I took various medicines, but the problem did not clear up.
Three years ago, I underwent a pericardectomy and I hoped that everything would be resolved; instead I continue to have chest pain and I still can't cope without taking steroids for it. I have had salivary gland biopsies. I am suffering from rheumatoid arthritis, and I have serious problems with my eyes. The lack of tears has caused inflammation of the corneas. I have strong pain and intestinal problems, all due to Sjogren's Syndrome. I often get tired when I walk a bit quickly or after any effort.
Currently, I am under the care of an immunologist at Niguarda Hospital in Milan, and I am taking many medications including painkillers when needed. Despite all these problems, I nonetheless go forward with the hope that a treatment for this disease will be found.
Email: [email protected]
Story posted 1-02-01
Story edited 3-25-02
Story translation by Kevin Howell posted 6-18-02
Story edited VH1: JTD 9-9-03
Story Editor V1: Judith Devlin
(Italiano) Franco: Sindrome di Sjögren
(Italiano) Sclerodermia dalla A alla Z
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Kevin Howell is the ISN Translator (Italian to English) for this story. He is a Clinical Scientist for Professor Black at the Royal Free Hospital in London.
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