I have been suffering from scleroderma since 1990.
Currently, I take nifedipine, cortisone, aspirin, and calcium. For ten months of the year, I have infusions of Iloprost (prostacyclin) for three days per month, which I have to say has helped me a lot.
One needs to be steadfast and never lower one's guard. I thank all those people who help me to do my routine things every day.
New email address needed 08-06-09 SLE
Old Email Prefix: amatulla
Story posted 7-26-01
Story edited 3-28-02
English translation posted 6-18-02
Story Edited 7-28-03 JTD/V1
Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
StoryTranslator: Kevin Howell
(Italiano) Giò: Sclerodermia sistemica progressiva
Voices of Scleroderma Volume 1
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.