SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Hilde: Scleroderma, Lupus, Raynaud's

I have been through hell and back several times.

Pink Flower for Hilde by Shelley Ensz I am going to make my story a short one.

I was diagnosed with lupus, scleroderma and Raynaud's in 1997. I have been through hell and back several times. The Raynaud's has been very painful for seven long years. I went through different medications and even had surgery where they stripped the veins. That did not work.

Anyway, just three months ago, I was introduced to a Dr. Elizabeth Fowler at the pain management clinic at St. Luke's Hospital in Maumee, Ohio. She did a 'Stella Ganglion nerve block' for severe ulcers in five different fingers between both hands. Guess what?

They went away and stayed away for about two months. I was supposed to have two other ones done with the first one, but it was not needed.

Now it is very cold and wet outside and again I have the painful ulcers. I just recently had another injection and again it is working. What I am saying is ask your doctor about this!

To Contact the Author

Hilde
Email: [email protected]
Story edited 01-11-06 JTD
Story posted 01-28-06 SLE

Story Artist: Shelley Ensz
Story Editor: Judith Devlin
LINKS
Lupus Stories
Raynaud's Treatments
Raynaud's Stories
Scleroderma

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Hope: Linear Morphea
 
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including memorials for
Frances Maude Baldwin Watson, Rubye Mai Blocker Westmoreland.
Thanks to Tamika Forteau and Paul and Margaret Phifer for raising scleroderma awareness!
Donate or Shop Now
 

TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content. Privacy Policy.
 

The most important thing in the world to know about scleroderma is sclero.org!

Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.