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Hilde: Scleroderma, Lupus, Raynaud's

I have been through hell and back several times.

Pink Flower for Hilde by Shelley Ensz I am going to make my story a short one.

I was diagnosed with lupus, scleroderma and Raynaud's in 1997. I have been through hell and back several times. The Raynaud's has been very painful for seven long years. I went through different medications and even had surgery where they stripped the veins. That did not work.

Anyway, just three months ago, I was introduced to a Dr. Elizabeth Fowler at the pain management clinic at St. Luke's Hospital in Maumee, Ohio. She did a 'Stella Ganglion nerve block' for severe ulcers in five different fingers between both hands. Guess what?

They went away and stayed away for about two months. I was supposed to have two other ones done with the first one, but it was not needed.

Now it is very cold and wet outside and again I have the painful ulcers. I just recently had another injection and again it is working. What I am saying is ask your doctor about this!

To Contact the Author

Email: [email protected]
Story edited 01-11-06 JTD
Story posted 01-28-06 SLE

Story Artist: Shelley Ensz
Story Editor: Judith Devlin
Lupus Stories
Raynaud's Treatments
Raynaud's Stories

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
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