My name is Iman and I was diagnosed with morphea when I was six years of age, and now I am fourteen years old. I do not know how I got it. I must of have forgotten. But when I got it, it was a brown spot.
The following year it started to get harder. And when it got harder it started to hurt me very badly. I would have sudden pain throughout my body.
For a long time I would try to hide it by always wearing sweaters or jackets or even long sleeve shirts all through the year. When it got too hot and I would take off my jacket, people would be so disgusted with my arm. I would always cry about it and I still do. I went to about fifteen different dermatologists throughout my life. They would just say that it is just dry skin, a common rash, or even eczema.
Finally, I found a doctor at the University of Chicago (where I live). She then told me that it was called morphea and she gave me this cream and it really gave me a boost in life to wear short sleeve shirts.
Even though I still have it, my case of morphea has gotten better in a week's time.
Story edited 05-22-05 JTD
Story posted 06-18-05 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Types of Scleroderma
PDF Brochure: What is Scleroderma?
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email firstname.lastname@example.org to request our Welcome email, or to report bad links or to update this page content.