This year my father got really ill. He suffered from two episodes of oesophageal bleeding ; in the course of the last bleed, he nearly died. Since then oesophageal varices continued to develop and new varices were found last week.
What was also observed about two years ago, was that his blood results became very bad; even taking 20mg cortisone daily, his thrombocytes are about 30,000 and his leukocytes are 2,000.
His skin has become very sensitive. Even light pressure easily causes bloody effusion as well as skin bleeding. A sticking plaster can also cause these symptoms. His rheumatologist is giving him a new basic therapy with Quensyl. Before he got worse this spring, he was given Resochin.
Two haematologists have done bone marrow biopsies and yet they were not able to make a diagnosis and have decided that CREST Syndrome is the reason for his suffering.
My father's health is getting worse and I am very worried about him. Maybe there is someone who has a similar or the same problem and this person could write to me. The doctors cannot help my father. Most of the doctors in the hospital say that they are facing a puzzle.
Email: [email protected]
Story posted 12-22-02
Story Artist: Shelley Ensz
Translated from German
by Dorota Dziadzio-Kouris
(Deutsche) Ingrid: Vater das CREST Sydrom sowie Overlap Syndrom
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Cindy Dorio, Shelley Ensz, Margaret Hollywood, Michele Maxson, Joan-Marie Permison, Anonymous, Maryellen Ryan, John Roberts and Bradley Lawrence.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.