My name is Janie. I am twenty-eight years old and was diagnosed with morphea on April 14, 2005.
I was about seven months pregnant when I first saw the spot. I, just like everyone else, thought it was a bruise. They tried to send me to a dermatologist, but I didn't think anything of it. Well, now I wish I did.
My daughter will be four years old in December, and the morphea has spread across my back and is traveling downward. And it scares me because the feeling I have on my back is weird. I feel a tightening, dull pain all the time.
I feel tired all the time, and everyone thought I was just lazy, but I would tell them I do not know why I am so tired. My doctor is giving me cortisone shots on the spots.
I wish I knew what I could do to help myself. I have a husband and fours kids. How is this going to affect them in the future? It scares me and I cry thinking about it.
The doctor I see told me that you could not get it through your genes, but my mother has it on her arm. So how is it not genetic? I want to know more.
My life has not been the same since I found out. My doctor told me to look it up on the internet. I do not want to look on the internet, I want someone to tell me where and how it happens to us.
Email: Withheld by request
Story edited 11-05-05 JTD
Story posted 11-18-05 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Causes of Scleroderma: Genetics
Types of Scleroderma
What is Scleroderma?
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