The worst part of these six years
has been the effect that it has had on my self-esteem.
I was sitting in class one day in the seventh grade, and a boy next to me looked at me and loudly exclaimed, "What is on your neck?!" I had no idea what he was talking about until I went to the bathroom and looked in the mirror. I saw a large patch of white skin on my neck. I was so scared and embarrassed that I did not tell anyone.
Since then I always wore my hair down to hide it. It was a month later when my mom saw it. She immediately took me to the doctor. The first doctor had no idea what it was and recommended a dermatologist. That doctor diagnosed me with morphea.
I have spent six years with an ugly white rash on my neck. During those six years, the doctor experimented with different treatments including tetracycline, cortisone, both topical and injection, pimecrolimus cream, and he even tried a laser removal.
The worst part of these six years has been the effect that it has had on my self-esteem. I can barely go a week without someone asking me what's wrong with my neck.
It is so embarrassing. I always keep my hair long and try to hide it. I hate it and I wish it would go away.
New email address needed 08-15-06 SLE
Old Email Prefix: jennieiscool
Story Artist: Ione Bridgman
Story Editor: Saba Sadiq
ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series .
Saba Sadiq is the ISN Story Editor for this story.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.