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Joe S: Morphea Scleroderma

I have too many bruise-like marks on my body to count.

Pumpkins by Shelley Ensz I am forty-two and have had morphea for about fifteen years now. I have too many bruise-like marks on my body to count. Fortunately, I have none on my face.

It is hard to tell whether I have gotten any new marks. I cannot tell the new from the old any more.

I am just starting to notice some arthritic pain in most of my joints. I still live quite a normal life. I am very active athletically and have not let my morphea take over my life.

All I want to say is that your life will go on. Do what makes you happy: pray, fish, ride motorcycles, whatever — just remember there is someone out there worse off than you, and use your mind to make yourdreams come true.

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Joe S.
[email protected]
Story posted 11-18-01
Story edited 9-1-03 SLE

Story Artist: Shelley Ensz
LINKS
Morphea Scleroderma
Go to John: Surviving Son-in-Law of Scleroderma Patient
 
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In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

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