Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Judy C: Mother of Daughter with Linear Morphea Scleroderma

My daughter, who is eight years old, has really done well with the medications and the whole diagnosis.

Cactus Flowers for Alison by Sherrill Knaggs, ISN Artist My name is Judy. I am married and the mother of four children. Three months ago, our oldest daughter, Alison, was diagnosed with linear morphea scleroderma (Juvenile Scleroderma).

Over the wintertime we noticed a large bruise like mark over the lower part of her right buttock. She also had various patches that went down her right leg. They are ivory colored patches surrounded by a darker border.

We had gone to an adult dermatologist and he diagnosed her as having something completely different. I scheduled an appointment with the pediatric dermatologist who immediately knew what it was by looking at it. It was biopsied and shown to be Linear Morphea Scleroderma with a lot of inflammation.

We also had ANA and DNA titres drawn and they came back negative. Our course of therapy has been a topical ointment called Protopic, an immuno-suppressant, and Plaquenil, an anti-inflammatory, twice a day.

My daughter, who is eight years old, has really done well with the medications and the whole diagnosis. We have been to an orthopedist for a baseline check of her symmetry and right now everything seems to be okay with her growth. We were told that if we can get her through her growth spurt with good growth she should do just fine.

I would like to know if anyone has taken these medications and what their success has been. If we see no improvement with these medications, I believe the next step is the Methotrexate.

I would love to hear from you.

To Contact the Author

New email address needed.
Old Email Prefix: djcowell
Story edited 10-24-02 SLE
Story posted 11-03-02 SLE
New email address needed 08-03-09 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Saba Sadiq
Juvenile Scleroderma
Linear Scleroderma
Morphea Scleroderma

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Saba Sadiq

Saba SadiqSaba Sadiq is the ISN Story Editor for this story.

Go to Judy Dee: Diffuse Scleroderma
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

The most important thing in the world to know about scleroderma is!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.