Hi, my name is Judy King and I was first diagnosed with scleroderma in November 1997. However, I first noticed my fingers turning white during very cold weather in 1993, and through my own research, I diagnosed myself with Raynaud's.
When I was diagnosed in 1997, it was because my middle finger on my right hand become infected on the tip and just under the nail. My family doctor treated it with several antibiotics which did not help. Then, he decided to do a blood test to rule out lupus, which it did, but instead it showed I have scleroderma.
My finger became progressively worse until in March 1998 I was told that amputation was necessary. My rheumatologist referred me to a neurosurgeon who performed a digital sympathectomy on my right hand and, thank God, my finger was saved.
I have esophageal difficulties, including swallowing, GERD, severe heartburn, and problems with different foods. Pain all over my body is my constant companion because of scleroderma, and I also have 7 herniated discs in my lower back.
I have just recently had to quit work and file for my Social Security Disability. I do not worry about my future, I just take one day at a time.
New email address needed.
Old Email Prefix: judyk
Story posted 5-10-01
Email note posted 01-20-05 SLE
Story Artist: Shelley Ensz
Difficulty Swallowing (Dysphagia)
MOST RECENT SCLERO.ORG DONORS
In Loving Memory of:
LOUISE BEELER: Susan Moore.
PATRICIA ANN BLACK: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Keith and Rosalyn Miller, and Elaine Wible.
KELLEY SIMMONS CORDEIRA: Susan Vance.
GAYLE HEDLIN: Daniel and Joann Pepper and Nancy Smithberg.
GENE WILKINSON: David and Carleen Waterman.
Click Here to DONATE FOR SCLERODERMA IN MEMORY.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Click Here to SCLERODERMA SHOP OR DONATE.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.