SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Jules: CREST

I don't know if it will stay like this or progress into something life threatening.

Morning Glory Flower by Shelley EnszI a forty-two-year-old caucasian woman. At the beginning of 2010, I found myself experiencing stress induced flare ups causing overall muscle pain. The feeling was somewhat between severe flu and over exertion. Sometimes the pain was so bad I couldn't get out of bed.

After a couple of months of these symptoms, I saw my General Practitioner. He ran all the typical blood work which produced a positive ANA with a 1:180 titer in an anti-centromere pattern. I was sent to a a rheumatologist who ran further bloods. Everything else came back normal as did my pulmonary function test and echocardiogram.

I constantly feel stiff in the morning and night. Exercise relieves my pain but I often feel a compulsive need to stretch my muscles.

My rheumy diagnosed me with CREST even though I only experience Raynaud's in my toes.

I feel so helpless. I don't know if it will stay like this or progress into something life threatening. She has left me with no answers or expectations and I'm afraid my obsession will only aggravate my symptoms. Any advice/ experience would be appreciated.

To Contact the Author

Jules
Email: [email protected]
Story edited 06-04-2010 JTD
Story posted 06-14-2010 SLE

Story Artist: Shelley Ensz
Story Editor: Judith Thompson Devlin
LINKS
CREST Syndrome
CREST Syndrome Stories
Emotional Adjustment: Coping
Emotional Adjustment Stories
Raynaud's
Raynaud's Stories
Skeletal Involvement
Skeletal Involvement Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Julian: Morphea
 
Recent Donors
See ISN News for recent donors, including memorials for
Christine Kane, Joleen M. Cascaden.
 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

 
The most important thing in the world to know about scleroderma is sclero.org!
Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.