I am now thirty-two years old and have had morphea scleroderma for almost twenty years. Unfortunately, it has not stopped and it has taken over a lot of my body: my stomach, back, right arm, both legs, right hand, both feet, and neck.The morphea is mostly dark in color with some being white and plaquelike.
I was on medication for almost ten years with little to no effect. When I started having children, I had to stop the medicine. I have also tried PUVA light treatments, but to no avail. I now receive cortisone shots into the lesions every time a new lesion appears, which is hard to tell because they are so widespread.
I am done having children now and am looking for something else to try. I am interested in experimental treatments aside from just using makeup to minimize the existing scars.
I feel very emotional about this at times, but I am grateful that, so far, I do not have any internal problems.
New email address needed 08-06-09 SLE
Old Email Prefix: jltjlt
Story posted 2-9-01
Story edited 7-23-03 SLE
Story edited VH1: JTD 9-5-03
Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
Ineffective Treatments: d-Penicillamine
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