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Kasra: Son of Father with Morphea Scleroderma

Iran

Flowers for Kasra by Shelley Ensz I am writing from Iran. My father has had morphea scleroderma since 1990. The morphea patch appeared on his stomach and was about the size of a hand.

He went to a doctor in 1990, and the doctor gave him one thousand vitamin E tablets to fight the disease. Before going to the doctor, his skin was hard. After using the tablets, his skin became softer and the color started to return to the usual color. Then it stopped.

We thought that it was cured, but in 2001, it started up again as small spots on the other side of his stomach. Please tell me what can we do?

The doctor that we went to in 1990 is now dead, and the doctors in Iran do not have much information about this kind of disease. Please help me. I am worried about his health. Thanks.

To Contact the Author

Kasra
New email address needed.
Old Email Prefix: prestige
Story posted 3-23-02
Email comment posted 7-13-03
Story edited VH1: JTD 9-5-03

Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
LINKS
Morphea Scleroderma
Voices of Scleroderma Volume 1

This Story is Featured in Voices of Scleroderma Volume 1

Voices of Scleroderma Volume 1 The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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