Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Karen G: Spouse of Scleroderma Patient

Has anyone ever had an iloprost infusion?

Emmett - for Karen G by Shelley Ensz My husband has scleroderma and we would like to know if anyone has ever had an Iloprost infusion.

He was told last week that he should have this but we are both unsure. It means going into Hope Hospital for about six to eight days.

Has anyone ever had this, and does it work? Thanks.

Webmaster's Note: In severe instances of Raynaud's, where gangrene or loss of a digit is possible, some doctors have had success with prostaglandin (Iloprost) infusions.

To Contact the Author

[email protected]
Story posted 3-11-01

Story Artist: Shelley Ensz
Raynaud's: Prostaglandin (Iloprost)
Go to Karen H: Eosinophilic Fasciitis
Recent Donors
See ISN News for recent donors, including memorials for
Christine Kane, Joleen M. Cascaden.

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

The most important thing in the world to know about scleroderma is!
Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.