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Karina: Mother of Morphea Patient


Pink Rambling Rose by Sherrill Knaggs, ISN Artist My name is Karina, I live in Pucallpa-Ucayali, Peru.

After many years of not knowing what my only child, who is only nine, had, she was diagnosed with localized morphea in the head.

At first, when she was four, she had a red spot, and I took her to the dermatologist, pediatricians. I think I went to all the ones I could find in my city.

Finally, a few days ago I was given the result. I am a bit scared. It is the first time I have heard about this illness. The doctor says it will be under control, and that it is a good thing that it is localized and hasn't spread. However, I still don't quite know what it is all about.

I feel guilty about not doing something else, but I know I am not alone. I have God and I have my family. Anyway, I ask for your help to know what this is about and how it will affect Jazmine's life.

I want to go to Lima, in search of other specialists, if you happen to know of one I would appreciate if you told me. She is the most valuable thing I have. Thank you.

To Contact the Author

New email address needed 08-06-09 SLE
Old Email Prefix: kvillafa
Story edited 03-12-07 JTD
Story posted 04-04-07 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Caregiver Stories
Juvenile Scleroderma
Morphea Scleroderma
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Symptoms of Systemic Scleroderma
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ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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