I thought it was awful. I have markings down my right leg from my hip to my ankle. My right leg is about 1.5 inches shorter and much thinner than the left. I was always self-conscious about it, and still am.
I was told there is no treatment. Now I had a dermatologist laser and lighten the marks, and sclero therapy on some of the veins to help because the skin was so thin you could see them all. This helped the appearance.
It never affected my life. I'm married with three children and still work. Remember life is what you make it. People will accept you!
If anyone wants to talk feel free to email me. never knew anyone with anything like me. If anyone has any similar stories, I would love to hear. Also, now I am just starting to experience a sensitivity in the areas. I'm not sure if it is progressing or not.
Story posted 12-14-10 SLE
Story Artist: Shelley Ensz
Juvenile Scleroderma Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email email@example.com to request our Welcome email, or to report bad links or to update this page content.