My name is Kendall. I am sixteen years old and a sophomore in high school. In August 2001, I found a small purple thing on my hip. Then I thought it was just a bruise. Every time I looked at it, it seemed to be larger.
I began to get scared and questioned my parents. It started to change colors and shapes, and made a hole in my side. After four months, I finally saw my family doctor.
They sent me to a dermatologist, who diagnosed me with Morphea Scleroderma. I was so scared and confused, I had no idea what it was. I have had this indentation in my side for almost a year now, and I have gotten to the point where I do not even pay attention to it.
I live my life knowing that each day is a blessing, and I thank God that I am still here with my family.
New email address needed 05-01-08 SLE
Old Email Prefix: Kinkle22
Story posted 4-19-02
Story Artist: Ione Bridgman
PDF Brochure: What is Scleroderma?
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Michele Maxson, John Moffett, Joan-Marie Permison, John Roberts, Margaret Roof, and Maryellen Ryan.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.