I am a thirty-one-year-old woman. I have been living with back pain, stomach problems and skin problems since I was a teen. I now have a diagnosis on my spine that has left me with no treatment and no answers after seeing many doctors and many specialists. They have diagnosed me with a herniated disc in my lower back which causes me a lot of pain, and Scheuermann's Disease in my upper back, which also causes me pain.
I have continual stomach problems. My heart palpitates, at times, like it is jumping out of my chest. I have also had anemia for three years and seen a specialist, but still have no answers. I have had acne all my life and recently saw a skin specialist, who diagnosed me with acne rosacea and dermatitis, with eczema on my body.
The pain in my body some days, is intolerable. I feel many internal pains. I have headaches almost everyday and fatigue. I wake up most mornings feeling like I have a hangover. My mouth and lips are dry. I am tired all day and my stomach feels bloated.
If anyone can help or has any suggestions for me, please e-mail.
New email address needed 08-06-09 SLE
Old Email Prefix: jeepn
Story posted 8-22-02
Story Artist: Ione Bridgeman
Story Editor: Judith Devlin
ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series .
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.