Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Keua: Possibly Scleroderma

Last year I developed Raynaud's.

Dandelion by Sherrill Knaggs, ISN Artist I am a twenty-nine-year-old female who is in the midst of a diagnosis. First off, my mother has an overlap of Sjogren's and scleroderma. Last year I developed Raynaud's.

I was fine until this summer when I began waking up with sore and swollen hands. I self-diagnosed myself with having rheumatoid arthritis. I finally decided to see my doctor when I could not even straighten my fingers without pain and discomfort and was feeling extremely lethargic.

The doctor ran tests. My ANA was positive with a speckled pattern, my ESR was elevated, and my rheumatoid factor was elevated. Also my hemoglobin and white blood counts were low. She referred me to a rheumatologist, but I do not see him until April, which is five months from now since we only have one in the city.

Since then I have begun swelling in my pelvic area and my lower legs, ankles and feet. Everyone tells me my eyes are always puffy. I am going back to my doctor tomorrow as I am concerned with possible fluid build up in and around my lungs or heart. My blood pressure was more elevated than usual and I am still so extremely tired.

I just want to say thank you for this invaluable site. I plan to learn as much as I can and come out on top of it all.

To Contact the Author

Email: [email protected]
Story edited 11-02-05 JTD
Story posted 11-18-05 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Causes of Scleroderma: Genetics
Difficult Diagnosis
Raynaud's Stories
Rheumatoid Arthritis
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Kevin: Undiagnosed Scleroderma, Lupus, Mixed Connective Tissue Disease, Rheumatoid Arthritis, etc.?
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

The most important thing in the world to know about scleroderma is!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.