I have been suffering from whatever it is I have since December of 2000. No one seems to be able to diagnose what I definitely have. I suffer from joint swelling, fatigue, uncontrollable sweating, Raynaud's, constant pain, etc.
My Raynaud's took a turn for the worse in September, and since then I have had two sympathectomies to try to save my fingers. My middle finger has not improved much, and I may still lose the tip of it or more. Has anyone had similar trouble with Raynaud's?
All I do is live, sleep and breathe the pain in my hand. No matter what medications the doctors give me, nothing seems to be able to control the pain, and they do not seem to want to give me anything stronger. I do not want to live on pain pills. I just want to get this over with and go on with my life, but right now I cannot because of the pain.
Also, I soak the pillow every night when I sleep. Is there anyone out there who has this problem? I have not been able to find an answer from any of the many doctors I have been to (which is another story in itself of the wonderful, compassionate doctors I have been to - HA!).
At first I thought it might have been different medications that caused the sweating, but stopping the medications has not seemed to help. Can somebody please just help me? Thank you.
Email: [email protected]
Story edited 12-29-04
Story posted 1-3-05 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
What is Scleroderma?
PDF Brochure: What is Scleroderma?
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to: