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Kirasia: Diffuse Scleroderma


Yellow Flower by Shelley Ensz After many admissions and diagnosis that were not correct, in September I was diagnosed with diffuse scleroderma.

I am most worried about the pain in my legs, particulary from the knee down. My calves are as hard as marble and their colour ranges from pale white (colour of death) to where the neck of the foot becomes purple. My toes are a bit darker, with little sensitivity sometimes and others pain like pins and needles. I am unable these days to wear a pair of closed shoes.

I don't know what I will do as I live in the mountains. I followed treatment at the Trento Civil Hospital, with cortisone, ciclosporine and microfelonate. I have “invented” and take every day, total immersion baths in warm water and around half a litre of extra virgin olive oil for 30 minutes, and I give myself a massage and I stretch. When I get out, without even patting dry, I lather myself with cream and I leave it on for about half an hour for maximum absorption. It seems to work, and even my dermatologists has been surpised with the softness of my skin, compared to my previous visits. He has even said that he feels “confident and optimistic”. If you want, you can try it, there's no harm in trying!

Now I ask you: I am fifty-four years old, and I have been paying my pension fund for thirty-seven years. I have been on sick leave for around twelve months in the last three years, and I risk a fifty percent reduction of my salary, which would be a big problem as I live on my own. How can I solve this problem? Am I entitled to an invalidity pension? Insurance? Can I ask for early retirement?

To Contact the Author

Email: [email protected]
Story posted 12-14-10 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Cos'è la Sclerodermia
Kirasia: Sclerodermia Diffusa

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ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

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