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(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

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By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Stories in English: L

LadyBugDi: Acrocyanosis (now Raynaud's) I was tired of going to the doctor and being told it was from stress…

Laira: MCTD, Scleroderma, SLE, Lupus, CREST, Lymphoma I was just seventeen when I was told I had rheumatoid arthritis…

Lama: Morphea Scleroderma If anyone reads this, please send me an e-mail and tell me anything you know about morphea…

Lama S: Morphea Scleroderma (UAE) It makes me feel great to know that he wants to marry me and spend the rest of his life with me as if these spots weren't bothering him at all…

Lancia: A Friend of a Morphea Patient (Italy) Some time ago a beloved friend of mine was diagnosed with scleroderma…

Larella: Mother of Son with Morphea Cody can't cover up the scarring and he can't hide from the stares or questions, but since he dyed his hair green…

Laura C: Mother of Morphea Scleroderma Patient My 13-year-old son was diagnosed with morphea in September 2000…

Laura H: Mother of Son with Linear Morphea What started as a bruise in his forehead, has come down to his nose, and his forehead has sunk a bit…

Laura Jean: Pulmonary Hypertension/UCTD Two weeks later I was diagnosed with severe pulmonary hypertension and a pulmonary embolism in my right mid lung…

Laura M: UCTD A rheumatologist told me I did not look sick and to "get a life"…

Laura S: Morphea Scleroderma It is frustrating that there is such a lack of knowledge for this condition and that I have had to go through the last thirteen years with very little support from doctors…

Laura V: Sjogren's Syndrome (Italy) When I was thirty I was diagnosed with an undifferentiated connective tissue disease (UCTD), which was later specified as Sjogren's Syndrome…

Laura W: Scleroderma, Sjögren's, Raynaud's and IBS I am glad to finally have an answer after years of tests, with no results…

Laurie (Bioteach): CREST Syndrome My first symptoms of this disorder began with Raynaud's when I was in my mid twenties…

LaVonne: Surviving Mother of a Daughter with MCTD My daughter died of MCTD in March 2000, at thirty-five years of age…

Lee: Undifferentiated Connective Tissue Disease (UCTD) A Sloan-Kettering researcher said our problems were related to HLA-B27 inheritance…

Leeben: Limited Scleroderma and CREST I won't go into how many doctors I had to visit before someone took me seriously; it was a total nightmare…

Lenor: Polymyositis, Pulmonary Fibrosis and Raynaud's Phenomenon In May of 1999, I was diagnosed with polymyositis and Raynaud's phenomenon then, in March of 2001, with pulmonary fibrosis…

(Dutch) Leon: Lineair Bij mij ontdekte men op 5 jarige leeftijd twee vlekjes op mijn linker onderarm…

Leslie R: Scleroderma, Vitiligo, Lupus, Anemia, Hypertension and Type 2 Diabetes He told me that I have scleroderma and explained what this disease is about. After suffering so long I finally got some answers…

Lesley: CREST Scleroderma I started choking on food. I was told it was globus. My hands went white in the cold…

Lida: Morphea Scleroderma (Colombia) When I became a patient, doctors looked at me like a weird case, and they did not allow my father to be present during the biopsy. While my parents could they took me to dermatologists, witch doctors and miraculous priests…

Lidia: Scleroderma Discovering that I was ill with scleroderma was very difficult for me. I remember that day I was with my husband when the doctor talked to us about what my condition was, and how serious it was…

Liliana: Morphea (Argentina) I have spots in my legs, hips, back and some in my arms…

Lina: Morphea Scleroderma I am twenty-five years old and two weeks ago I was diagnosed with scleroderma. I went to see a rheumatologist and he said my case wasn't very important…

Linda: Morphea Scleroderma I wonder if any of you who read this, know any methods of treatment…

Linda E: Mother of En Coup de Sabre and Morphea Patient Five weeks later I noticed that the bruise was still there so we went to a pediatrician who referred us to a dermatologist…

Linda F: CREST Scleroderma, Rheumatoid Arthritis, Fibromyalgia, Hashimoto's Thyroiditis, Hematoma, and Osteomyelitis I need to tell you all the gory details so you can truly understand what a miracle it is that I am alive today…

Linda G: Aunt of Scleroderma Patient I had never heard of this disease until my nephew told me my niece had it one day and I broke down and cried as she is so young…

Linda W: Surviving Daughter of Scleroderma Patient All she wanted was for others to learn of this disease and know her story. She requested this about two weeks before she died…

Lindsey: Eosinophilic Fasciitis (EF) My skin remains very thick and constricted…

Lindsey Z: Morphea Scleroderma I was self conscious in fear that others would care, or find me ugly because of it…

Lisa A: Spouse of Systemic Scleroderma Patient My husband was diagnosed in July 2000…

Lisa C: Limited Scleroderma My mother has Rheumatoid Arthritis (RA) and my thirteen-year-old daughter has what is believed to be early lupus…

Lisa D: Morphea Scleroderma I have had morphea scleroderma for twenty-eight years. I first noticed it when I was seven years old…

Lisa Kate McGowan: Linear Scleroderma When I was eighteen years old, I was diagnosed with linear scleroderma. It changed my life because it affected my left arm by leaving a big shiny scar…

Lisa P: Undifferentiated Connective Tissue Disease (UCTD) I have an appointment with a new rheumatologist on May tenth. Hopefully I will get some answers…

Lisa R: Difficult Diagnosis - Scleroderma? My story started five months ago when I woke up one day and out of nowhere, my fingers were tingling and a bit swollen…

Lisa S: Morphea Scleroderma I am nineteen now and I am just wondering if this could get any worse and if I should be getting it checked out more with a specialist…

Lisa T: Morphea Scleroderma When I was about thirteen years old I developed white marks around my neck where the skin was thinner than the rest of the skin on my body…

Lisa V: Diffuse Scleroderma and Raynaud's When I first got sick, I thought I was dying. My fingers started hurting really bad…

Lisa W: Diffuse Scleroderma, CREST and Multiple Sclerosis I was recently diagnosed with multiple sclerosis (MS). That also took over a year to diagnose. My doctors tell me that I am one out of millions with this case of bad luck…

Liz: Localized Scleroderma: Morphea Over the next eight months I was misdiagnosed by three different doctors…

Lois: Fibromyalgia with Possible CREST When I read Carla's story it almost sounded like mine! When I was in tenth grade, Raynaud's started and a horrible kind of rash…

Louise: Linear Scleroderma I got a bit of a fright when I read about scleroderma affecting the organs…

Loretta: Fibromyalgia My spinal doctor says it's Fibromyalgia, the family doctor says it's my back. I am so confused…

Lori: Surviving Daughter of Father who had Scleroderma We held his hands and told him how much we loved him and watched him take his last breath at 5:50 p.m. on September 6, 2002…

Lori S: Mother of Eosinophilic Fasciitis Patient On the second biopsy, they went further into the fascia and confirmed the diagnosis of eosinophilic fasciitis (EF). I would like to talk to other parents or patients with EF…

Lorna: Undiagnosed Scleroderma? When I went to the hospital this young doctor came in and looked at my hands. He said that he thought I had Raynaud's and scleroderma…

Lorrie: Limited Scleroderma/CREST At first I thought, "Oh my goodness! I am going to die." But my doctor assured me that I could very likely live to be an old woman…

Lu: Sjogren's Syndrome (Italy) I have migrant polyarthritis and enormous digestive problems…

Luca: Difficult Diagnosis, Incomplete (Italy) These are my symptoms: joint pain, bone pain, fever, the inside of my mouth is irritated, as if I had burned it…

Lucia: Scleroderma I was diagnosed with this illness in August of 2011. I am Colombian, 44 years old and have been a resident of the US for the past 6 years…

Luis: Son of Scleroderma Patient (Spain) I believe my mother's illness was caused by the depression she suffered due to the death of my thirteen-year-old brother…

Lulu: Lupus and CREST Scleroderma I thought that I was getting lazy. It took all I could do to just get through the day…

Lulu M: Grandson with Morphea Scleroderma He survived all this, only to get diagnosed with morphea scleroderma. He is on methotrexate and scarring seems to be less active, and has not gotten any bigger…

(Italiano) Lupo: Sclerodermia con Sindrome di Raynaud Ringrazio tutto lo staff medico che mi ha diagnosticato la sclerodermia…

Lyn: Systemic Sclerosis I thought my life was ending and that I would never have that little girl I always wanted. I was wrong. I did make it through somehow…

Lynn: Lupus, Scleroderma, Sjögren's and Polymyositis Overlap I am going to start to see the doctor more often and take better care of myself…

Lynn F: Raynaud's and Scleroderma So on November 11th my finger was amputated just above the top knuckle. Unfortunately, an infection set in…

Lynn S: Diffuse Scleroderma and Pulmonary Hypertension No one believed me; I guess because I look healthy. I would always hear, 'You are too young for this!' It is hard for people to understand…

Lynne: Morphea Scleroderma One day when I was seven years old, my family and I went swimming in the local river…

Lynsey: Daughter of Patient with Scleroderma and Lupus My mother has had all but four fingers amputated, all of her toes on her left foot and her right leg up to her knee has been amputated…

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

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