SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Lama: Morphea Scleroderma

What if I got one spot on my face or in a place that I cannot hide?

Yellow Flowers for Lama by Shelley Ensz I am an eighteen-year-old girl. It all started last summer when I realized that I had a very small white spot on my back. My mom and I thought it was just dry skin. But later on, the color started changing — it became brownish and it also enlarged.

I had another spot on my right thigh which at first I thought was a bruise. Then I realized that it was not a bruise because it stayed. It became darker and bigger and the skin looks burnt. The only thing annoying about it is the dark color; other than that there are no side effects.

Now I have a tiny similar spot above it and I am sure it is going to enlarge with time. I went to the doctor, who gave me a medicine, but it did not help at all. The doctor also told me that the dark color will not go away and might stay there forever, and that new spots might appear any time.

This thing is scaring me like hell. I am afraid that it will keep on spreading. What if I got one spot on my face or in a place that I cannot hide? I do not know what to do. I cannot wear skirts or go to the beach with my friends because I think it is very ugly and I hate how it looks. But there is nothing I can do.

If anyone reads this, please send me an e-mail and tell me anything you know about morphea. I will be really happy to get an e-mail about this. So far, it is depressing me to think of it. And I cannot imagine it spreading more. I am also afraid it will develop later negative effects. Please tell me if something similar happened to you.

To Contact the Author

Lama
New email address needed.
Old Email Prefix: lama454
Story posted 12-12-00
Story edited 7-9-03
Email note posted 01-19-05 SLE

Story Artist: Shelley Ensz
LINKS
Morphea Scleroderma
Types of Scleroderma
Juvenile Scleroderma
PDF Brochure: What is Scleroderma?
Go to Lama S: Morphea Scleroderm
 
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.

 

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

 
The most important thing in the world to know about scleroderma is sclero.org!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.