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Laura V: Sjogren's Syndrome


Birdhouse by Shelley EnszI am thirty-nine years old, and when I was thirty I was diagnosed with an undifferentiated connective tissue disease, which was later specified as Sjogren's Syndrome.

Now I take a small quantity of cortisone and immuno suppressors per day. I have learned to live with muscular pain and a perennial tiredness, but I try to lead a life as close to normal as possible, even if all this limits my doings quite a bit.

The worst part at the beginning was the total lack of clarity on the part of medical personnel, and when I still had not realized that this was an illness for which no cure has been found, this was told to me in a very direct and traumatic way.

Everything I know about the illness I have figured out myself. Perhaps doctors should take psychology courses periodically in order to try to understand and make themselves understood to patients.

Greetings, and I hope research gets ahead.

To Contact the Author

Laura Villi
Email: [email protected]
Story edited 03-23-2010 JTD
Story posted 04-15-2010 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
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ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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