Now I take a small quantity of cortisone and immuno suppressors per day. I have learned to live with muscular pain and a perennial tiredness, but I try to lead a life as close to normal as possible, even if all this limits my doings quite a bit.
The worst part at the beginning was the total lack of clarity on the part of medical personnel, and when I still had not realized that this was an illness for which no cure has been found, this was told to me in a very direct and traumatic way.
Everything I know about the illness I have figured out myself. Perhaps doctors should take psychology courses periodically in order to try to understand and make themselves understood to patients.
Greetings, and I hope research gets ahead.
Story edited 03-23-2010 JTD
Story posted 04-15-2010 SLE
Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Cos'è la Sclerodermia
Sindrome di Sjogren
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Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
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