SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Liliana: Morphea

Argentina

Magnolia for Liliana by Sherrill Knaggs, ISN Artist Hello, my name is Liliana and I was diagnosed with morphea scleroderma seven years ago. At first the illness was completely unknown to me. They performed several biopsies until they finally told me it was scleroderma. I have spots in my legs, hips, back and some in my arms.

In these years I have been living with the illness, I have learned the worst one can do is stay still, without doing any exercise. I have tried several routines but the one that works best for me is pilates which are exercises in flexibility, that really helped me a lot.

I would like to know more about my illness, whether there is a special diet I should follow, or if there's a new treatment. I hope someone can get in touch with me to chat, share advice and so on.

To Contact the Author

Liliana
New email address needed 12-20-06 SLE
Old Email Prefix: liliana_peralta67
Story translated 02-04-06 AL
Story prepared 02-04-06 JTD
Story posted 02-25-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba Leon
Story Editor: Judith Thompson Devlin
LINKS
(English) Morphea Scleroderma
(English) What is Scleroderma?

(Español) Liliana: Morphea

(Español) Esclerodermia

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Lina: Morphea Scleroderma
 
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including memorials for
Jim Miller, Frances Maude Baldwin Watson and Rubye Mai Blocker Westmoreland.
Thanks to Winn Schillberg for donating to scleroderma research.
Donate or Shop Now
 

TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content. Privacy Policy.
 

The most important thing in the world to know about scleroderma is sclero.org!

Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.