I was first diagnosed with morphea when I was twelve. I started getting bruise-like marks on my legs and midsection. They did a biopsy on the mark on my waist and gave me the diagnosis. The dermatologist sent me home with a couple of different creams to try and nothing helped. Over the next couple of years I did not really think of it much, since the marks stopped showing up after about a year.
I now have them all over my midsection, on my legs and ankle, and I think I may be getting a new one on my neck. I have been having pain in my muscles and joints, especially my right knee. It seems that nobody in the state knows much about it and most doctors seem to just look confused as I explain it.
I am nineteen now and I am just wondering if this could get any worse and if I should be getting it checked out more with a specialist. Any advice is good advice! Thanks!
Story submitted 5-12-03
Story posted 5-30-03
Story Artist: Ione Bridgman
Story Editor: Saba Sadiq
ISN Artist Ione Bridgman created original artwork to illustrate this page. She is 90 years old, and lives in New Zealand. Her lovely paintings illustrate many of our pages and the covers of our Voices of Scleroderma Book Series .
Saba Sadiq is the ISN Story Editor for this story.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email firstname.lastname@example.org to request our Welcome email, or to report bad links or to update this page content.