Hello everyone, my name is Luca and for a few years now I have been suffering a lot of pain in the sternum and the arms. Every doctor's appointment I have had has turned out negative results, except for a high level of white blood cells, but I am really sick. I don't know what else to do, I do not live well. I have been told oftentimes that my symptoms are imaginary, but that's not the case.
My mother died from Wegner's Granulomatosis, and I am finding the same symptoms. However, I have been tested, all negative. These are my symptoms: joint pain, bone pain, fever, the inside of my mouth is irritated, as if I had burned it. For a while now I haven't been able to digest correctly, but the most painful are still the pains in my sternum. I have also had EKGs, but to no avail. This week I got tests again, the only thing that was out of the normal levels was cholesterol, and also triglycerides, as well as my white blood cells.
Please answer, as I feel really sick. Thanks for everything.
Email: [email protected]
Story edited 07-14-09 JTD
Story posted 07-22-09 SLE
Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.