I was diagnosed with linear scleroderma when I was twenty years old. We had a lot of difficulty finding out what was wrong with me and we went to several hospitals and doctors here in the Philippines.
My symptoms included severe cramps in my right leg, where the pain is pushing me to my limits. Often times, I would have cramps in the middle of my sleep and while I was driving. I am always shaking during my attacks because of the pain, and I would cry, thinking that it may help alleviate the pain a little. My leg and arm on the right side of my body are smaller. There are also a lot of spider veins on my right side.
It is a good thing that my family, relatives and friends are all supportive of me. My mother's friends helped us source for D- Penicilamine which I am suppose to take three times a day at the start. We got this medicine from Australia, Hong Kong, Canada and the USA. It costs us so much since we are just an average income earning family. I stopped taking this after five years, when I had rashes all over my body.
I know I had to fight this disease since it is there already and there is really no cure. I have learned to accept the fact that I am so gifted and that is why I was given this "special" disease. Depression was my number one enemy back then, but I am glad that I was able to overcome it.
I am now almost thirty-three years old, on my first pregnancy (I am six months on the way) and enjoying every minute of it. I am aware of relapses but I have strong faith that I will never be alone in this. It is always a blessing to have such a wonderful family and a very loving and supportive husband who understands my condition.
I hope that all scleroderma patients will never lose hope and realize how beautiful life is.
Email: Withheld by request
Story edited 08-18-05 JTD
Story posted 08-19-05 SLE
ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Devlin
Types of Scleroderma
What is Scleroderma?
PDF Brochure: What is Scleroderma?
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!
Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.
SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:
International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content.