Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Maria R: Linear Scleroderma

I am as healthy as I ever was, except the line on my forehead never disappeared, but it does not bother me in any way.

Orange One Day Lilly by Sherrill Knaggs, ISN Artist I was seven years old when my teacher at school noticed some redness on my forehead. My mum used to brush my hair from a middle partition to sides and sometimes would touch my forehead with the comb. That was our idea of how it appeared there. But before that I had ringworm on my face and everywhere else.

After a while, the red spot did not disappear, it grew brighter in color and into a red line and it lowered towards my nose.

I was taken to see many doctors. They obviously had no idea what it was. I then went to a bigger hospital where quite an old lady doctor and quite a knowledgeable one, as it turned out, told us it was linear scleroderma. My mother read books on the subject and I was told that my fingers would fall off at some stage. That was obviously not something any girl would look forward to. [Webmaster's note: Fingers do not fall off in any type of scleroderma, however the systemic form can severely affect the hands and lead to amputation sometimes.)

I have to admit I had quite a few bad headaches and fainted quite often, but generally I was very healthy. That probably was more caused by attending school in the opposite side of the city and music classes in the evenings with not much to eat in between. Now I am thirty. I hardly ever have any headaches and never faint. I am a bit of a porky though, and I still have to shed post-baby kilograms.

Anyway, my fingers are still with me, I am as healthy as I ever was, except the line on my forehead never disappeared, but it does not bother me in any way. I have a fringe to cover it up, even my husband does not know it is there as it is not as red as before. Some days it looks brighter than others, sometimes it is so pale you could not see it at all, only the skin texture is a bit different on it. After having it for twenty-three years, I am very much used to it. I do wish it was not there and would not mind to get rid of it somehow given even the smallest chance. Sometimes I wonder if the diagnosis was correct, but there is not one person to ask as I live in a different country now.

I worry if my son is going to inherit it and hope that he will not, but I am always checking his forehead for any signs of illness. I am a bit paranoid about it, I have to admit. I suppose any mother would be.

I would like to know if there is a chance it can be hereditary and is there any treatment, like laser, to get rid of the line.

To Contact the Author

Email: Withheld by Request
Story edited 04-19-06 JTD
Story posted 06-16-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
Linear Scleroderma
Types of Scleroderma

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Maria T: Daughter of Deceased Scleroderma Patient
Most Recent Donors

Winn Schillberg
Reading Voices of Scleroderma Books: Diana Kramer.
Sharing Scleroderma Awareness Bracelets: Deb Martin, Brenda Miller, Vickie Risner.
Thanks to UNITED WAY donors of Central New Mexico and Snohomish County!

In Loving Memory

Patricia Ann Black: Marilyn Currier, Shelley Ensz, Richard Howitt, Gerald and Pat Ivanejko, Juno Beach Condo Association, Keith and Rosalyn Miller, and Elaine Wible.
Gayle Hedlin: Daniel and Joann Pepper and Nancy Smithberg.
Janet Paulmenn: Anonymous, Mary Jo Austin, Shelley Blaser, Susan Book, Dennis and Pat Clayton, Grace Cunha, Cindy Dorio, Michael and Patricia Donahue, Shelley Ensz, Nancy Falkenhagen, Jo Frowde, Alice Gigl, Margaret Hollywood, Karen Khalaf and Family, Susan Kvarantan, Bradley Lawrence, Jillyan Little, Donna Madge, Michele Maxson, Barry and Judith McCabe, John Moffett, My Tribute Foundation, Joan-Marie Permison, John Roberts, Margaret Roof, Maryellen Ryan, Mayalin and Kiralee Murphy, Nancy Settle-Murphy, and Bruce and Elizabeth Winter.


SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA

Email [email protected] to request our Welcome email, or to report bad links or to update this page content.

TOLL FREE HOTLINE 800-564-7099
Free to U.S. and Canadian Callers. Ask for our Free Info Packet by mail or email!
Scleroderma, Pulmonary Arterial Hypertension, and related illnesses.
Privacy Policy.

The most important thing in the world to know about scleroderma is!
Donate Now
Copyright 1998-2016, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.