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Mariposa: Progressive Systemic Sclerosis

Italy

Apricot Watsonia by Sherrill Knaggs, ISN Artist Hello everyone. I am a twenty-eight-year-old girl and I have had rheumatic problems for a good ten years.

With the course of the years my health became worse until seven years ago. I was diagnosed with systemic lupus erythematosus (SLE). Afterwards, not even a year later, Raynaud's Syndrome and then scleroderma.

I have finger ulcers, also a second degree esophagitis, but I should say that about a year ago it started receding thanks to the doctors that follow my case.

I am from Bari, Italy, and every four months I go to Florence, Italy to see Professor Marco Matucci Cerinic. I went to him thanks to my mother, who heard about him on TV. I have to thank this professor, because I have been in treatment for a year, and the illness is stopping. They tell me I am fine, and I feel fine. I can keep going.

I must admit I have been scared of not being able to enjoy life to the fullest, but I trust science. I also thank God for giving me a character that allows me to try and bring hope to other patients every time I was in the hospital.

I believe that recovering is torture if you are lonely with the illness. So the best thing to keep going is smiling!

To Contact the Author

Mariposa
Email: [email protected]
Story edited 03-12-07 JTD
Story posted 04-11-07 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
(Italiano) Mariposa: Sclerosi Sistemica Progressiva
ENGLISH:
Digital Ulcers (finger ulcers)
Esophageal Involvement
Dr. Marco Matucci Cerinic
Medical: Diseases and Symptoms
Raynaud's Stories
Symptoms of Systemic Scleroderma
Systemic Lupus Erythematosus (SLE) Stories
Types of Scleroderma
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Maritere: Mother of Daughter with Morphea
 
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