SCLERO.ORG
Search
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Maritere: Mother of Daughter with Morphea

Mexico

Pink Bow by Shelley EnszMy daughter got small white spots in the upper leg, by the thigh, on both sides of her stomach and on the wrists. When we first visited a doctor, he said it was probably fungus, which was later ruled out. Afterwards another one said it might be stress, but we didn't believe it. Our daughter is an extrovert, smart and happy and our family, thank goodness, is free of conflict.

Then another doctor said it was vitiligo, and the mother of a girl who has that illness put us in contact with a dermatologist in Monterrey, Mexico, who confirmed this diagnosis, and prescribed very costly medication that had to be imported from Spain, as well as laser therapy. When our resources, energy and patience finally ran out when we saw no results, we suspended the treatment. Then the largest spot (about 2 by 7 cm in diameter) between the knee and the left foot began to show some color. I thought it was some sort of delayed effect from the medicine, but instead of the skin returning to a regular shade, it first turned reddish and then purplish. It might have been just a regular bruise, but instead of swelling, the skin began to sink, perhaps just millimeters but it was sinking. Now the area has become less dark, and the skin looks bright and her skin has tightened.

I came across this information fortuitously when I was looking for some information on diffuse scleroderma that a friend was diagnosed recently. I feel a bit better knowing that morphea is benign, but I am worried that by not treating my daughter with massages nor moisturizer I might have compromised the health of muscles or bones. Sporadically she complains of pain in her leg. We thought it could be normal, from growing, but she is thirteen now and the spots appeared about five years ago. I don't know what doctor I should go to since the one who treated her before was supposed to be the best and now I can't trust his diagnosis.

Could anyone direct me to a doctor that has treated you successfully and that is in the Northeast region of Mexico? Thanks in advance.

To Contact the Author

Maritere
Email: [email protected]
Story edited 09-17-09 JTD
Story posted 10-19-09 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
Spanish:
Acerca de la Esclerodermia
Maritere: Madre de una niña Morfea

English:
Caregiver Resources
Caregiver Stories
Difficult Diagnosis
Difficult Diagnosis Stories
Juvenile Scleroderma
Juvenile Scleroderma Stories
Morphea Scleroderma
Morphea Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Mark: Systemic Scleroderma
 
United Way of Central New Mexico
United Way of Snohomish County
See ISN News for recent donors, including memorials for
Jim Miller, Arlene Marie Petulla, Frances Maude Baldwin Watson and Rubye Mai Blocker Westmoreland.
Thanks to Winn Schillberg for donating to scleroderma research.
Donate or Shop Now
 

TOLL FREE HOTLINE, U.S. and Canada: 1-800-564-7099
Ask for our Free Info Packet by email or postal mail!

SCLERO.ORG is the world leader for trustworthy research, support, education and awareness for scleroderma and related illnesses, such as pulmonary hypertension. We are a service of the nonprofit International Scleroderma Network (ISN), which is a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team, or Volunteer. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected] to request our Welcome email, or to report bad links or to update this page content. Privacy Policy.
 

The most important thing in the world to know about scleroderma is sclero.org!

Donate Now
Copyright 1998-2017, International Scleroderma Network. AKA Scleroderma from A to Z and SCLERO.ORG. All Rights Reserved.